Category Archives: Uncategorized

Cardiology report: all clear! She turned two? She’s an old lady, now! The last adoption form, and “Sarah Joy” Let’s do this thing.

As Sarah beings to come into her own, she becomes free to adopt (yay!) through termination of rights The uncertainty of her paternal lineage and that whole thing Mom’s grace and compassion in allowing us to adopt New caseworkers, new forms, new hoops to jump through: home study, financial review, deeply personal interviews

Despite the many illnesses and challenges to her health, Sarah turns one! She has a miraculous cardiology appointment – the hole in her heart is 50% smaller! She comes off oxygen a month later! She begins CAREENING everywhere, with reckless abandon! We begin to really see her personality. She’s funny, mechanically-inclined, and anxious to catch […]

Dealing with the oxygen, medication(s), and followup appointments Starting OT with Mandi Getting sick, so, so many times Paige’s heartbreak of going to the hospital (no, honey, we aren’t taking her back) Visits with Mom, and the constant specter of THE COUNTY overseeing everything

Feeding, cuddling, and prepping for eventual discharge Trading off care with the Burkes Brooklyn was lovely, despite the rain The rain that we brought home with us when we found out she was ready to come home after passing her room air challenge The moment of bringing her home and realizing that, yeah, uh, this […]

Getting the news that little Sarah was born so, so early Getting the news that she needs visitors, and the struggle to get access The suspicious side-eyes, and the tireless devotion of the NICU staff Slowly gaining trust, and learning everything there is to know about Sarah